database.name

What exists, and how to get in.

University of Washington Center for Mendelian Genomics (UW-CMG)

Getting access

Committee review General Research Use (GRU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy) (DS-EP)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Bicuspid Aortic Valve, IRB, PUB, RD) (DS-BAV-IRB-PUB-RD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (HMB)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Head and Face) (DS-HFA)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Neurodegeneration with Brain Iron Accumulation) (DS-NBIA)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (IRB) (HMB-IRB)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review General Research Use (IRB) (GRU-IRB)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Brain Disorders) (DS-BDIS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Congenital Heart Defects) (DS-CHDEF)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000693.v7.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

About this database

Last updated2026-09-12

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