database.name

What exists, and how to get in.

NHLBI TOPMed: Pulmonary Fibrosis Whole Genome Sequencing

Getting access

Committee review Disease-Specific (Interstitial Lung Disease, IRB, NPU) (DS-ILD-IRB-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001607.v4.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Lung Disease, IRB, NPU) (DS-LD-IRB-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001607.v4.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Pulmonary Fibrosis, IRB, NPU) (DS-PFIB-IRB-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001607.v4.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Pulmonary, Interstitial Lung Disease, IRB, NPU) (DS-PUL-ILD-IRB-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001607.v4.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (IRB, NPU) (HMB-IRB-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001607.v4.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Lung Diseases, IRB, COL, NPU) (DS-LD-IRB-COL-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001607.v4.p3
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

About this database

Last updated2026-09-11

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