database.name

What exists, and how to get in.

NHLBI TOPMed: My Life Our Future (MLOF) Research Repository of Patients with Hemophilia A (Factor VIII Deficiency) or Hemophilia B (Factor IX Deficiency)

Getting access

Committee review Health/Medical/Biomedical (PUB) (HMB-PUB)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001515.v3.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

About this database

Last updated2026-09-11

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