database.name

What exists, and how to get in.

National Heart, Lung, and Blood Institute (NHLBI) Bench to Bassinet Program: The Pediatric Cardiac Genetics Consortium (PCGC) Study

Getting access

Committee review Health/Medical/Biomedical (HMB)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001194.v4.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year
Embargo
12 months

From the operator’s published policy metadata.

Committee review Disease-Specific (Congenital Heart Disease) (DS-CHD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001194.v4.p3
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year
Embargo
12 months

From the operator’s published policy metadata.

About this database

Last updated2026-09-11

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