database.name

What exists, and how to get in.

Colon Cancer Family Registry (Colon CFR)

Getting access

Committee review Health/Medical/Biomedical (HMB)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs002733.v3.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (IRB, COL) (HMB-IRB-COL)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs002733.v3.p2
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Cancer, MDS) (DS-CA-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs002733.v3.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Cancer, PUB, MDS) (DS-CA-PUB-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs002733.v3.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Cancer, IRB, PUB, NPU, MDS) (DS-CA-IRB-PUB-NPU-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs002733.v3.p2
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Colorectal Cancer, MDS) (DS-CC-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs002733.v3.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Colon Cancer, IRB, COL) (DS-COC-IRB-COL)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs002733.v3.p2
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

About this database

Last updated2026-09-13

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