database.name

What exists, and how to get in.

Center for Common Disease Genomics [CCDG] - Neuropsychiatric: Epilepsy: Epi25 Consortium

Getting access

Committee review Disease-Specific (Epilepsy, Structural Brain Abnormalities, Intellectual Disability, MDS, RD) (DS-EPSBAID-MDS-RD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy, Structural Brain Abnormalities, MDS, RD) (DS-EPSBA-MDS-RD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy, Structural Brain Abnormalities, Convulsions, Intellectual Disability, MDS, RD) (DS-EPSBACID-MDS-RD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy and Epilepsy Comorbidities, MDS, RD) (DS-EPCOM-MDS-RD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy, Structural Brain Abnormalities, Convulsions, Intellectual Disability, NPU, MDS, RD) (DS-EPSBACID-NPU-MDS-RD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy Multiple Disorders, MDS) (DS-EPI-MULTI-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy, Antiseizure Medicines, MDS) (DS-EPASM-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (NPU, MDS) (HMB-NPU-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy, Antiseizure Medicines, MDS, RD) (DS-EPASM-MDS-RD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy) (DS-EP)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (MDS) (HMB-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review General Research Use (IRB) (GRU-IRB)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review General Research Use (GRU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Cardiology, Neurology, MDS) (DS-CARNEU-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Seizure Disorders) (DS-SEIZD)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy, MDS) (DS-EP-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy, NPU) (DS-EP-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (HMB)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy - Adults, NPU, MDS) (DS-EPI-ADULT-NPU-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review General Research Use (NPU) (GRU-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy and Anti-epileptic Drugs, MDS) (DS-EAED-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Neurology, MDS) (DS-NEUROLOGY-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy causes and Responses to Antiepileptic Tx, MDS) (DS-EARET-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Neuropsychiatric Disorders, IRB, NPU) (DS-NPD-IRB-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Neurology - Adults, NPU) (DS-NEUROLOGY-ADULTS-NPU)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (IRB, MDS) (HMB-IRB-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Health/Medical/Biomedical (GSO) (HMB-GSO)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Nervous System Diseases, NPU, MDS) (DS-NSD-NPU-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Nervous System Diseases-Adults, NPU, MDS) (DS-NSD-ADULTS-NPU-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Neurology, Epilepsy, MDS) (DS-NEURO-EP-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Mental, Behavioral and Neurodevelopmental Disorders, NPU, MDS) (DS-MBND-NPU-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

Committee review Disease-Specific (Epilepsy and Anti-epileptic Drugs, IRB, NPU, MDS) (DS-EAED-IRB-NPU-MDS)

Apply at
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001489.v4.p2
Ethics
IRB / ethics approval required
Agreement
Data use agreement
Cost
No charge
Renewal
Every 1 year

From the operator’s published policy metadata.

About this database

Last updated2026-09-13

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